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Tuesday, January 13, 2009

Sorry I did not post an update sooner. I have been so busy lately. It is hard having a baby in the NICU and having a 4 year old at home. I did not see Tyler much last week and he really missed me.
Bryleigh had her cephalocele surgery this afternoon. Everything went great. They were able to remove the fluid pouch and close it up. The little piece of brain that was poking through was able to be pushed back in. Right after surgery she woke up and was able to be taken off the ventilator. She got back to her room and went to sleep. She slept pretty good for about two hours then woke up screaming. I think she was uncomfortable, hungry, and in pain. It was so sad. They were able to feed her through her feeding tube,and give her some Tylenol. I just called to check on her and they said that she was doing good. I spend my days at the hospital with her, and the nights here with Tyler. I hate not being able to stay with her in the evenings, but Tyler has been getting very upset when I am not here so I need to divide my time. The doctors said she should be home by the weekend. I am so excited.
Michael and I looked up the meaning to Bryleigh's name and it means strong and gracious. It is so true!! :-)
I will post pictures soon. I will also update more often. Thank you everyone for your support and prayers.

4 comments:

Carla said...

Thats great news with the surgery! Yes, its hard having a little one at home & a baby in the NICU, I've been there... Hopefully, she will come home soon & he can love on his little sister!

Tyler said...

It is so good to hear that home is insight. I am sure you are anxious to bring your Miss Bryleigh home, especially with having Tyler at home also. She is so precious and she sue does live by the meaning of her name (strong and gracious). I will continue to keep you in my prayers after you return home.

Diane, Tyler's mom

Lisa said...

Congrats!!! I just got caught up on everything. Your daughter is absolutely BEAUTIFUL!!!!

Sarah said...

Congrats on your gorgeous girl!

I found your blog via another hydro blog, my daughter also has hydrocephalus and I have added your blog to my blogroll, hope you don't mind.