Thursday, May 7, 2009

I've been tagged!!

I've been tagged!

I have been tagged by my blogging friend, Carla, Miles' mom. This is my first one!!!

24 things about myself
1. What is your current obsession? Probably working out. Haha. I am training for a 5k and the class I am in is a no walking all running class. So I run alot because I do not want my class to have to wait on me during practices. lol

2. If you could do any job in the world & be 100% successful, what would it be? I would like to be a lawyer. I have my degree in paralegal studies, but do not even do that as my career. But I think being a lawyer would be cool.

3. What are you wearing today? Texas Longhorns t-shirt that says "Tyler's Mommy" on the back (its his t-ball team name) and brown velour pants. I didn't work today.:-)

4. Why is today special? Greys anatomy 2 hr event tonight!!

5. What would you like to learn to do? cook. I cannot cook anything at all. But it may help if i tried. Michael does all our cooking,

6. What’s for dinner tonight? Who knows. haha

7. What’s the last thing you bought? #7 at Grandys!!

8. What are you listening to right now? Tyler pretending to play baseball. He makes all the noises from the sound of hitting the ball, the crowd, the batter, and the announcer!!

9. What’s your most challenging goal? To run in a marathon in the next year or so.

10. What do you think about the person who tagged you? Carla sounds like she a such a great mommy. She really likes animals (as do I). She has adorable children! We actually don't live to far from each other.

11. If you could have your house totally paid for, fully furnished anywhere, where would it be? Hmm that's a good one. I would say like Rockwall Tx. Still close to family.

12. What is your favorite vacation spot? Panama City Beach Florida. Have not been in years.

13. What would you like to have in your hands right now? What i have right now. My little Princess.

14. What would you like to get rid of? The rest of my baby weight, haha

15. If you could go anywhere in the world for the next hour, where would you go? To see my best friend Stephanie who lives in SC

16. What super power would you like to possess? Physical healing, for obvious reasons. I'll third that!

17. What’s your favorite piece of clothing? This pair of jeans I have. I cant remember where I got them though.

18. What is your dream job? #2

19. If you had $150—what would you spend it on? I would go to babies r us. I love that store. I would buy Bryleigh some light up toys. She loves lights!

20. What do you find annoying? Ignorance

21. Describe your personal style. I am a bit boring. My little sister goes shopping with me on occasion to help me pick out clothes. She is the trendy one!!

22. What is one of your secret skills? I can tell by looking at someones hair if they have hair spray in it, gel, bio silk type stuff, etc. Lol i know its really weird, but I am a hair person. haha

23. What are you most proud of? My kids. They mean the world to me. They have made me the person I am! I am also proud of my soon to be hubby! He is such a great person! Great dad and step dad. I couldn't ask for better!!

24. What is your typical morning routine? Alarm goes off at 5:45 a.m. I hit snooze until about 6:20. Feed Bryleigh, wake Tyler up, get ready, pick Tyler's breakfast, head out the door. Drop Tyler off at daycare then drop Bryleigh off at her sitters, then head to work. Work until 4:30, go get Tyler then Bryleigh, go home and clean or do whatever it is that needs to be done. Play with the kiddos, get ready for bed, sleep, repeat the day. haha

I will tag the readers whose blogs I follow who have not already done one:
1: Lisa (Elisabeth's Mommy)
3: Zoe (Lillian's Mommy)
4: Hamza (Huda and Hamza's Mommy)
4: Josephine (Avery's Mommy)
5: Shannon (Dylan & Duncan's Mommy)
6: Sara (Kadyn's Mommy)
7: Stefani (Audrey's Mommy)

Tuesday, May 5, 2009

Not the shunt!

Good news! It is not her shunt! They did a CT and everything looked good. We don't really know why her head size is bigger. We will continue to keep a close eye on it. Thank you for the prayers!

What a Day

The appointment with the developmental doctor went good. She said that Bryleigh is about 2 almost 3 months in her gross motor skills and as far as cognitive its hard t tell because Bryleigh's vision impairment. She also felt that Bryleigh does not see well. But every doctor has told me that so nothing new! She said that her expressive language is good. She would coo and Bryleigh would coo back. Also, she does very good at trying to hold her head up. So we will just keep working with her!
The doctor did her head measurement and got a measurement of 46.7. That is up 2 centimeters from Wednesday. I know technique plays a little role in measurements. I took her to her pediatrician to get measured and they got her at 45.8. Which is still up from her appointment two weeks ago. I also measured and got a higher number than I normally do. So I am going to take her to the hospital to get looked at. She has been spitting up alot, but she is not lethargic or anything, so that great. I just want to get her looked at as soon as possible. Her doctor said I could just wait for an appointment with the neuro surgeon, but I think it may be best to have her looked at just in case. I will keep yall posted!!Please keep us in your prayers!!

I also have been up since 4a.m. My older sister got in a wreck, and then my little sister got in one around 8a.m. They are both okay though!!But its been a looong day!!

Monday, May 4, 2009

Finally an Update!!!! Good News!

I am finally getttng a chance to update :-). I have been so busy lately. This site is blocked on my computer at work so I cant update then, then by the time I get home I don't even get on the computer because I have so much to do!! Too busy!! Anyways...We met with the neurologist and he said that he thinks Bryleigh may have what is called a lobar holoprosncephaly. When the brain is developing it is suppose to divide into two hemishperes. With a lobar holoprosencephaly it means that the brain did not divide completely. The doctor went ahead and scheduled an MRI so we could confirm/exclude this. Well we had the MRI done last week, and she does not have it! That is great news because it is just one less thing we have to deal with. He said the MRI she had the day she was born was a little hard to read because the brain was so distorted (she had not been shunted then). Now that she has her shunt things are a little more clear. He said that her ventricles are much smaller, that she does have her corpus calossum but it is thinned. She also does not have a Chiari malformation. Pretty much what he said is that she has congenital hydrocephalus, absent septum pellucidum, and an encephalocele that had been repaired. So nothing new!!
Bryleigh has been doing great. I started spoon feeding her cereal and she has done great! We tried some carrots yesterday, and she liked them. I also switched her bottles from Avent to Dr. Brown. She spits up alot now so I thought maybe the Dr. Browns would help. They have definitely helped with her gas, but not so much with the spitting up. She weighs 14lbs now. She had her 4 month check up and she got her shots. She only cried when they held her leg, she was fine right after. That is really amazing to me because Tyler would cry so hard I would think he was gonna pass out! She has been through so much already it just doesn't faze her :-). She has been really making noises too. She loves the sound of her voice. She also will smile for us, but mostly smiles when she is staring at the ceiling or something while she is making noises. When we went to the ophthalmologist he said that there was no damage to her eyes, so i assumed that she could defiantly see. Well the neurologist said that it is great that everything looks good with her eyes, but whether or not what she is seeing registers with her brain is what we have to wait and see. She still does not track objects. Every once in awhile I think she sees me, but she mainly just likes looking at lights. So we just have to wait and see. We have an appointment with the developmental doctor tomorrow. We hav not seen her since Bryleigh was in the NICU.
Bryleigh also had an MRI of her spine the day they did her brain and everything looked good with that.
Her therapy with ECI is going good. She has three therapist that go to see her. Her legs are a little tight while her arms are loose. But we will just keep working on that!
She is just so cute! She loves sleeping in my bed, but I try to avoid that, but she just seems to sleep so well, not me though. Lol. I will let everyone know how the developmental doctor goes. Its a bit rude of me to leave everyone hanging with what my last post was about. Wont do it again!! Promise! I still read every ones blogs everyday from my phone!!I will be better!!

Smiling for Mommy!!

She sucks her thumb!

She doesnt care to much for her Bumbo!