Monday, March 23, 2009

Neuro Surgeon Update

Bryleigh had her CT scan Friday. They canceled the MRI of her spine that was suppose to be done. The insurance would not cover it for some reason. But if Dr. Price feels she needs one then we will have it done later on. She did really good for the CT. They put her to sleep for like 15 minutes. Afterwards we met with Dr. Price to go over the findings. She said that everything looked good with the shunt. Her ventricles had gotten smaller, and her head size had not increased. However, she did see what she thought was a small arachnoid cyst. She said that normally these do not cause a problem, but it can. She is going to have an MRI in 6 months to see if it has grown, if it has, then we will have to discuss surgery :-(. Also, she said that Bryleighs hydro was not aqueductal stenosis. I had read of a procedure ETV that can be done sometimes with the aqudectual stenosis. So Bryleigh does not really fall into that category. But, her fourth ventricle is small so she could possibly still be a candidate. We will not do this if the shunt keeps doing a good job. But if for some reason it fails, Dr. Price said we could discuss having the ETV. Everytime I leave the doctor I think of a ton of questions that I wanna ask. We have an appointment with a neurologist April 7th, so I will write all my questions down and ask him. We also do not have to keep her at an incline as much as we were, I will still keep her at the incline at night to sleep, but since she likes laying flat, i will be able to let her do that more.
Bryleigh is starting to track objects more! I think she was just delayed a bit. I have seen her smile, but not at me. Lol. We will get there. Her therapy is going good. She really tries to hold her head up. She has started sleeping all night!!! She goes to sleep around 10 and wakes up for a bottle about 6. This is when i get up to get ready for work, so its great. She falls back to sleep after that and will sleep till 10. She weighed 11lbs Friday. She has chubby cheeks :-)She is soo cute!!
Overall I think she is doing great!! We love her so much!!!


Josephine said...

She is so beautiful! It sounds like she is just doing so great!

Sweetest Girl in the World said...

She is so adorable!

I'm so happy to hear she is doing great! I'm the same way with coming up with a bunch of questions after the appointment. If you're going to see Dr. Elterman, he will ask a billion questions and it's probably one you have forgotten or it will spark a forgotten question.

Happy to hear your getting some rest :)

Take Care!

Lisa said...

So what is the cause of the hydrocephalus?

Love all the pictures. She's a beauty!

Zoe said...

She is adorable!!!

The cause for Lillians hydrocephalus was a Midline Arachnoid cyst. (the size of a golfball and was causing an obstruction) Her Neurosurgeon said that they can be "common" but many never know that they have one b/c it doesn't cause a problem.

Nola's Special Place said...

I am glad to see Bryleugh is doing well. She is adorable! Thank you for following my blog!!